Events
July 13, 2009
Golf Scramble
Ada, MI
Upcoming Event:
The Annual 5k Run, Walk-n-roll & Family fun Day
This is a wonderful family event in a great setting. We have a completely paved course that allows people in wheelchairs, and those with strollers to come and enjoy the excitement of our run/walk to find a cure for Spinal Muscular Atrophy, the leading genetic killer of children under two. We also have a fun run and clowns for the kids, entertainment, and an awards ceremony immediately following the race. Many families make a day of it and enjoy the beautiful surroundings and great playground at Hawk Island Park. Please join us in the fight to find a cure! Contact Holly Schafer with any questions or for more information.
Saturday, May 2, 2009
Registration begins at 8:30am
Race begins at 9:30am
Hawk Island Park
1601 East Cavanaugh Rd
Lansing, MI 48910
Registration and Fees
Early Registration (Before April 22) - $20
Late Registration (April 22 and after) - $25
Maximum Family Fees - $75
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This event is hosted by the Michigan Chapter of Families of SMA and includes:
- Free Kids Fun Run, Walk-n-Roll T-shirt for all registered participants at the walk!
- Prizes for the 1st three finishers in each age group!
- Apples the Clown, with Face Painting and Balloon Animals for the kids!
What is Families of SMA?
Families of SMA…
- funds research for treatments and a cure for Spinal Muscular Atrophy.
- provides families with information and support through newsletters, resource referrals, conferences,
equipment, programs and research updates online at www.curesma.com. - sponsors the International SMA Research Group Meeting for scientists.
- is a volunteer driven, international, nonprofit organization.
What is Spinal Muscular Atrophy?
SMA is the leading genetic killer of children under two.
SMA is a group of inherited and often fatal diseases that destroy the nerves that command voluntary muscle movement, such as crawling, walking, head and neck control, and even swallowing and breathing.
One in 40 people is a carrier and one in 6,000 babies are born afflicted with SMA.
Currently, there is no cure for Spinal Muscular Atrophy.